Crushed
Yea. I haven't been good about this blog thing. No one is reading this to start with; and I don't really want to spend my entire life mired in cancer-land. Sounds good, but the fact of the matter is not a day goes by that I don't think about it at least a little.
And to be honest,there hasn't been much to report. Numbers [the ever-important CA27.29] has been going down steadily. A few months of Faslodex side effects, but that is over now. Then, last month, the numbers shot back up. Not all the way up, but enough to give concern. In one month, I lost 4 months of progress. With an oncology appointment with Dr. Roger next week, my nerve endings have been doing a bit of a dance.
This afternoon I received a call from Nurse Lauren, my oncologist's PA. I am not waiting for scan results, so this call was pretty unexpected. In fact, I couldn't imagine why she would be calling. She doesn't do scheduling either.
After the normal pleasantries she informed me that Dr. Roger, my wonderful oncologist, has taken a personal leave of absence with no known return date. When I questioned her, the tone of her voice led me to believe that this might very well be permanent.
My world has been turned upside down. Dr. Roger and I have been together for 6 years. He is an outside the box thinker, who feels comfortable with my questions and thoughts. He considers me part of the team. And we have a great time talking about where to get really delicious ethnic foods for under $10 per person.
With my blood markers rising, this is when I need Dr. Roger! I can't believe that I have lost this person from my medical team, even if only for a few months. I am going to have to teach a new doctor who I am, and figure out her priorities, and hope that I don't piss her off, plus trust someone new.
Nurse Lauren remains as my PA, Nurse Linda continues as my oncology nurse, but I have been transfered to Dr. Christina. She is very young. Has the perfect resume. Dr. Christina wants scans. She isn't Dr. Roger.
Blood work and Faslodex will remain the same for next week, but I won't meet my new doctor until the scan results are back.
After the call was over, I burst into tears. I didn't really realize how I felt, don't cry easily so this clearly has me upset. I did my business conference call and did what anyone would do- took a nap.
I am going to miss Dr. Roger tremendously.
And to be honest,there hasn't been much to report. Numbers [the ever-important CA27.29] has been going down steadily. A few months of Faslodex side effects, but that is over now. Then, last month, the numbers shot back up. Not all the way up, but enough to give concern. In one month, I lost 4 months of progress. With an oncology appointment with Dr. Roger next week, my nerve endings have been doing a bit of a dance.
This afternoon I received a call from Nurse Lauren, my oncologist's PA. I am not waiting for scan results, so this call was pretty unexpected. In fact, I couldn't imagine why she would be calling. She doesn't do scheduling either.
After the normal pleasantries she informed me that Dr. Roger, my wonderful oncologist, has taken a personal leave of absence with no known return date. When I questioned her, the tone of her voice led me to believe that this might very well be permanent.
My world has been turned upside down. Dr. Roger and I have been together for 6 years. He is an outside the box thinker, who feels comfortable with my questions and thoughts. He considers me part of the team. And we have a great time talking about where to get really delicious ethnic foods for under $10 per person.
With my blood markers rising, this is when I need Dr. Roger! I can't believe that I have lost this person from my medical team, even if only for a few months. I am going to have to teach a new doctor who I am, and figure out her priorities, and hope that I don't piss her off, plus trust someone new.
Nurse Lauren remains as my PA, Nurse Linda continues as my oncology nurse, but I have been transfered to Dr. Christina. She is very young. Has the perfect resume. Dr. Christina wants scans. She isn't Dr. Roger.
Blood work and Faslodex will remain the same for next week, but I won't meet my new doctor until the scan results are back.
After the call was over, I burst into tears. I didn't really realize how I felt, don't cry easily so this clearly has me upset. I did my business conference call and did what anyone would do- took a nap.
I am going to miss Dr. Roger tremendously.
posted by *susan* at
8:52 PM
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